This week’s charity nomination on The Phil Cawley Show was the Get Crackin’ For Cian
A social media campaign, similar to Ice Bucket Challenge, the idea is to crack an egg over your head, nominate minimum 3 friends and Text CIAN to 57802 to donate €2
All proceeds will go towards the Hope for Cian Trust an organisation set up by the family of 4 year old Cian Lynch, who has a one in million condition called Dyskeratosis Congenita.
Cian is in need of an expensive lung transplant and may need to travel to Great Ormond Street Hospital in the UK to see if he will be a successful candidate for the transplant. If not, Cian and his family will need to travel to Boston Children's Hospital in the US which is a substantial cost.
Barry Orr from Betfair, a regular on The Phil Cawley Show, was the first to get crackin’
The Hope of Cian describes Cian’s rare condition:
“Four year old Cian McDonnell Lynch is from Carlanstown in Co Meath. He suffers from a very severe form of Dyskeratosis Congenita which affects one in a million. Cian is very badly affected by this condition. He went completely blind in March 2011 at the age of one after an operation to try to save his sight was not successful.
Shortly after this he got very sick and doctors soon discovered that his bone marrow was failing. It took a long time to get a diagnosis for Cian as his condition is so rare. He was constantly in and out of hospital getting platelet and blood transfusions for a year until his blood count hit rock bottom.
In March 2013 Cian had a bone marrow transplant that was successful. In January this year Cian went to hospital as he was low in energy and low oxygen saturation counts. He spent five weeks in hospital until he was diagnosed with microscopic pulmonary AVMs. Doctors are not sure if this new problem is caused as a side effect of his bone marrow transplant or his underlying condition.
This is very serious for Cian. His doctors recently gave us the devastating news that Cian has only months to live. We are not giving up. His files have been sent to Great Ormond Street for review. If they do not agree to do a lung transplant we are hoping to take Cian to Boston as they are not ruling him out completely for a lung transplant. We have amazing friends and family who want to help us by doing fundraising for Cian which will go also go towards expenses. We don't have a cost of what it would be to go to America but substantial funds need to be there to be able to go. As soon as there is anymore information, it will be posted to Cians page.
To donate €2 TEXT ‘Cian’ to 57802
Additional charges may apply.
