Sinead Tighe, from Tallaght in Dublin, is currently training for the Dublin City Marathon, except Sinead won't be running it alone.
She will be running the entire race while pushing her youngest child, Daniel (9) in a pram.
Daniel has a severe form of the rare Sotos Syndrome, which means he can't balance properly, he has impaired vision and he doesn't speak.
Daniel will also grow to be seven foot tall.
Sinead and her husband Keith want to convert their home to include tracking for harnesses, they want to make it wheelchair accessible and they also want to install a wet room.
Sinead says, "This is a house that Daniel will live in for the rest of his life and it's for my daughter too, so that when I'm gone she doesn't have to worry about that part of it."
“You work so hard, you wash him, you feed him, you dress him, you’re in the house 24/7, you don’t get a rest, you're lonely and constantly on the go. It’s Daniel’s world that you live in all the time.”
The cost of the house conversation will run as far as €100,000 however the family are not eligible for any grants to help with the cost of the work.
That's why Sinead is running the marathon while pushing Daniel in his pram, she wants to raise awareness about Daniel's condition and the mother of two also needs to raise vital funds.
However beyond the fundraising, running has also given Daniel a sense of identity. Daniel gets his own number when they run and people in the area are quick to shout out, "Go on Daniel!"
Sinead says, "I’ve ran up to 14 miles with him –there’s a big smile on his face when we're out running.”
"I feel that when I'm running with him - that I am Daniel."
Sinead was on with Dermot & Dave and you can catch the full interview here.
To get in touch with Sinead and keep up with Daniel's Voyage you can visit their Facebook page here.
